John Kavanagh today launched a nationwide campaign that celebrates those who live with Neurofibromatosis (NF), a genetic condition that causes tumors to grow in various types of nerves anywhere in or on the body.
The SPG coach launched the NF Fighter campaign alongside Rubén Curran (7), Rafa Curran (4), Lee Dowling (9) and Ella Dowling (4) ahead of World NF Day on Wednesday, 17th May.
Speaking at the campaign launch, Kavanagh said: “I am delighted to help launch this fantastic campaign.
“I’ve met some of the kids here today who live with NF every day and they really go through a lot, so if I can help them out by helping to raise awareness and help get them support, then I am happy to do it”.
NF is a serious condition that can affect the development of tissues such as bones and skin.
In about half of cases, the condition is passed from a parent, however the other half of cases are a chance event called a spontaneous gene mutation, where the gene responsible for causing NF has a misprint in the genetic code.
“I have met some of the world’s toughest fighters, yet today I’ve met some little fighters who have faced far tougher challenges than any of the champions of the ring.” Kavangah continued.
“The NF Fighter campaign is a really nice initiative that gives people the opportunity to acknowledge and nominate those who do their best to fight against the condition and I’m delighted to support it.”
As there is no known cure or prevention at present, NF is a lifelong condition.
The NF Fighter campaign was launched by The NF Association of Ireland to raise awareness of the condition, and people are asked to nominate their ‘NF Fighters’, those who fight against and live with the condition every day.
There are a number of categories including ‘ NF Fighter of the Year’, ‘Medical Professional of the Year’, ‘Family Member of the Year’, and ’ Fundraiser of the Year’ . To nominate your NF Fighter log on to www.nfaireland.ie .
World NF Day is celebrated annually and this year it will be celebrated on Wednesday, 17 May.
It is recognised worldwide with buildings being lit up blue to raise awareness and support those suffering with the condition.
Buildings that will be lit up in blue in Ireland include Dublin City Council, the Convention Centre Dublin, the Mansion House, Kilkenny Castle, and Derry City Council Buildings to name a few.
For further information about the NF Fighters campaign, NF, and the NF Association of Ireland please visit www.nfaireland.ie .